Seth Rogen Speaking out on Dementia/Alzheimer’s Research 

Happy Monday!

Home-grow boy, Seth Rogen speaks out for Dementia cause. Dementia is one of North America’s most expensive diseases. Seth is an advent supporter of Dementia/Alzheimer’s research and not too long ago he addressed congress to bring this situation to their attention. The result? Hilarity mixed with genuine facts and honest sympathy.

Creating a Legacy has been proven to improve the lives of terminally ill patients and help them cope with their situation. Our mission is to be able to help people with the diagnosis to capture and preserve their stories.

Watch this, it’s awesome.

Documenting a mother’s life and her descent into dementia: The Vancouver Sun

Mum, here’s our story published in the Vancouver Sun today. I am grateful for our journey together. Who would have imagined it would have lead me to passion & my purpose Happy Mothers’ Day. My first one ever without you. The following is preview of the article that came out today in The Vancouver Sun.

14-05-09 - Van Sun - Documenting a mother's life

   Trish Neufeld and her mother didn’t always get along. They were opposites. Neufeld was an award-winning documentary filmmaker. Her mom, Patricia Graham, was a businesswoman. “She was for community, people, public service. I was for art, making movies and having fun.”

So they argued. They also talked and texted every day, sharing every challenge, triumph and heartbreak. They were best friends. The day her mother stopped fighting, Neufeld knew something was very wrong.

“I would pick a normal fight between us, and she wouldn’t fight back, she wouldn’t play her role.”

Neufeld would soon have the answer: A shattering diagnosis of frontotemporal dementia. The decline would be rapid and inexorable. As her mother sat next to her, the specialist they had waited six months to see told Neufeld bluntly that for the next 18 months her mother would still be able to dress and toilet herself. By 24 months, she would begin having trouble turning on the taps, using utensils and dressing. Within 48 months she would be incontinent, unable to care for herself, and bedridden. Her organs would fail and she would die.

As they left the office, her mother threaded her arm through her daughter’s and said, “I think that went really well. What do you think?”

Loss of insight, coupled with a lack of awareness about the disease is part of the cognitive puzzle associated with FTD, a form of dementia that is characterized by changes in behaviour and personality. The illness most often strikes in the 50s and 60s, progresses rapidly and has a strong hereditary pattern.

Graham’s own mother had died mysteriously when she was only 37, something Graham had puzzled over her whole life.

Neufeld first noticed odd behaviour in her mother on Christmas Day in 2007. Graham — who had been enthusiastically building a china set for her only daughter — gave Neufeld a place setting in the wrong pattern.

She drove Neufeld’s car for a long distance with the emergency brake on. For one of their regular weeknight dinners her mother called to say she’d bring over steak and salad. “She showed up with a $2.19 package of shredded beef and bagged salad. Normally she would have brought tenderloin, avocado, tomatoes.”

It was only in retrospect, after Graham’s diagnosis at the age of 64, that Trish and her mother’s friends would see what had seemed like small eccentricities through a new lens.

“I never for a minute thought it was dementia,” says Neufeld.

On diagnosis Neufeld, 34 at the time, was urged by the doctor to get power of attorney, arrange for homecare, sell her mother’s business. She was warned that FTD brings about changes in behaviour and a lack of judgment that can often be embarrassing: impulsive acts, obsessions with specific foods, and hypersexual behaviour were to be expected.

In shock, Neufeld tried to carry on with her life. She went to work, took care of her mother’s affairs, and grieved. “I came home every night, lay on the kitchen floor and cried.”

Click the photo above to view the entire piece.

My Mum’s Legacy to Me

It’s day 3 of our tribute to mother’s day…today I have a few mementos to share with you from my mum.

As you might know my mother passed away due to FTD Dementia in October last year. Some of my favorite things of hers weren’t diamond necklaces or jewels (but that would have been fine too!), just a pile of thank you and love notes from my mum. As her disease worsened, so did her handwriting but this only increase her loving sentiment.

I just love this pile of cards . I treasure these cards. They make me laugh, sometimes they make me cry. But they remind me of the most important thing. My mothers love.

Trish xo

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Stephen Colbert Pays Tribute to his Mother on National Television

Stephen Colbert paid tribute to his mother who had recently passed away before starting his show on June 06 2013. She was 92 years old, happily married and raised eleven children. Stephan tells a wonderfully, heartfelt story about his mom’s legacy and the impact she had on his life and his family.

There and Back Again: Kevin’s Tribute to his Mom

Hello Memory Box Followers!

 

Mother’s Day is almost here and to celebrate, we at Memory Box Movies are going to be paying tribute to all the mothers out there by sharing personal stories about what makes our mothers so special. Everyday this week we will be posting a new story commemorating those who raised us and love us without question. Our first story comes from our Production Coordinator Kevin Parr who had a story to tell us about how he keeps his mother close to him at all times…

 

Dear Memory Box,

 

My name is Kevin Parr. I am the Production Coordinator for MBM and I have a very special way of honouring my mother. When I was graduating high school and gearing up to leave our home town of Saltspring Island to the big city of Vancouver, my mom gave me a going away present. Before I left on my journey my mother had something made for me. A ring. Not just any ring. THE ring. The one ring. Yes, my awesome, sweet mother had taken some of her old gold jewellery, had it melted down and reformed into a replica of the ring used in the films and described in the novels. It is solid gold with the engravings of elvish on the outside and inside of the ring. She gave this to me not only to recognize my obsession with the franchise but also as a metaphor for never giving up my dreams and to aways keep walking the path I had set for myself. Well, it’s been 8 years since that day and I still am wearing the ring. I have never taken it off. Not once. My route may have changed from acting but the message is still clear as day. Always go for what you want, even if the path is scary and you may get a little lost, always be moving towards your goals. What ever it may be. That is something that I have kept with me ever since and it is something I will continue to have in my life by for years to come. I love that I will always have this reminder of my mother, the wisdom and confidence she gave me and still gives me to this day. Love you mom!

 

– Kevin Parr

 

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